Join Lexus Santa Monica To “Scooter For Batten”

April 20, 2016 lacarguy Community Involvement, LAcarGUY News & Events, Lexus Santa Monica

Batten disease (also known as Spielmeyer-Vogt-Sjögren-Batten disease) is an extremely rare and fatal autosomal recessive neurodegenerative disorder that begins in childhood. It is the most common form of a group of disorders called the neuronal ceroid lipofuscinoses (NCLs).

Although Batten disease is usually regarded as the juvenile form of NCL (or “type 3″), some physicians use the term Batten disease to describe all forms of NCL. Historically, the NCLs were classified by age of disease onset as infantile NCL (INCL), late infantile NCL (LINCL), juvenile NCL (JNCL) or adult NCL (ANCL).[1]

Scooter For Batten

At least twenty genes have been identified in association with Batten disease, but juvenile NCL, the most prevalent form of Batten disease, has been linked to mutations in the CLN3 gene.

Join us on May 21st from 9am until noon at the Palisades Charter High School as we raise money to cure this horrible disease.  We will have face painting, a DJ, and kids activities.

Resgister at curebatten.org/scooter for more details.

The hashtag for the foundation is #curebatten make sure to follow them on Twitter, Instagram and Facebook

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