Tag: CF research
LAcarGUY is once again happy to run the Touchdown to a Cure event to benefit sufferers from Cystic Fibrosis in conjunction with the Pipeline to a Cure Foundation. Mike Sullivan (CEO) of LAcarGUY, has been a member of the Pipeline to a Cure board since its inception. Throughout football season the event donates thousands of dollars to this great non-profit cause, and helps raise awareness of Cystic Fibrosis as well. If you would like to learn more about the event visit it here.
The Touchdown to a Cure Event
LAcarGUY is continuing their Touchdown to a Cure event this year and will be donating $300 for every touchdown that USC (The University of Southern California) scores this season. We’re off to a good start this season, but Pipeline to a Cure needs as much money as they can get to help with research costs. Follow along with our latest donations here, and even make one of your own if you like.
About Pipeline to a Cure
Pipeline to a Cure is a non-profit organization started in 2007 in homage to an exciting discovery about surfing CF patients. Children and adults alike suffering from Cystic Fibrosis were found to be much healthier if they were also regular surfers. After studying these patients, Australian researchers and Doctors realized that by inhaling salt water regularly the surfers were keeping their lungs moist and helping them eliminate mucus infected with bacteria more easily. Now nearly every CF patient uses a salt-water spray on a daily basis to improve their condition.
After that discovery Pipeline to a Cure was started and the organization has raised more than $2 million in research funding since then. You can rest assured that when you make a donation to the organization the majority of your money is going toward research because $0.92 of every dollar donated goes in the research fund.
About Cystic Fibrosis
Cystic Fibrosis is a debilitating genetic defect that creates thicker mucus in the lungs leading to trouble with lung health and digestion. It affects around 30,000 children and adults, and makes it difficult for their pancreas, digestive system and immune system to function properly. Additional research funding helps aid the goal of discovering a cure to this disease.
The 6th annual Pipeline to a Cure gala, held on July 20, raised more than $525,000 to help fund cystic fibrosis research. The total funds raised for the entire Pipeline campaign is now more than $2.5 million. LAcarGUY is honored to be part of the initiative in support of the Cystic Fibrosis Foundation.
About 700 people gathered for the gala, sharing passion for the ocean and helping others, and listened as CF ambassador, Carly Lindmeier shared her story and everyday struggle with the disease. She talked about how the hereditary disease means hours of daily treatment, dozens of medications, and the effects of cystic fibrosis-related diabetes. Carly talked about the average lifespan of someone with CF which is 37 years old, and at 18, she is now middle-aged. She thanked Pipeline supporters for their support as it helps bolster her sense of hope to continue to fight with a positive attitude.
Attendees had the opportunity to participate in the Bid for a Cure auction where all dollars raised go directly to research. Every dollar raised was matched by Mike Sullivan of LAcarGUY, bringing the total contributions for Bid for a Cure to $135,000.
Mike and Christine Ness were honored for their ongoing support of the event and the CF mission to find a cure. Other celebrity attendees included honorary co-chairs Laird Hamilton and Dave Kalama, Gabrielle Reece, Billie Joe Armstrong of Green Day, Olympic gold medalist Jason Lezak, surf legends Robert August, Peter “PT” Townend, Jericho Poppler, Mickey Munoz and Sam August. Jed Noll, son of legendary big wave surfer Greg Noll, contributed a hand-shaped, re-creation of the 11-foot surfboard Greg rode on that historic winter day at Pipeline on the North Shore of Oahu in 1964.
The Pipeline to a Cure event was created to herald the discovery by Australian researchers who found that children with cystic fibrosis who surfed had significantly healthier lungs. Doctors determined that inhaling saltwater mist has a powerful effect on rehydrating the lining of the lungs, which allows cystic fibrosis patients to more easily eliminate bacteria-contaminated mucus. This discovery led researchers to develop a hypertonic saline solution, which cystic fibrosis patients around the world now inhale every day. In essence, cystic fibrosis patients now mimic a “surf session” on a daily basis.
Cystic fibrosis affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
Current and past sponsors are Wahoo’s Fish Taco, LAcarGUY, A-Med Health Care, Hyatt Regency Huntington Beach, American Airlines, Coast Benefit Consultants, BJ’s Restaurants, Nick Alexander Imports, Coca-Cola, RAJ Manufacturing, Todd and Sue Klug, Matros Family, Healthcare Management Services, Kaiser Permanente, Rutan & Tucker, Heineken, Crown Imports/Pacifico, CBS Sports, Quiksilver, Volcom, HB Surf School, Newport Surf Camp, Time & Alarm Systems.